I’m 19. I’m in pain every day. Doctors are no help, I have hEDS and main management sucks. I’ve tried LDN, OTC stuff, PT, etc. it’s not getting better and everything hurts all the time. I’m tired and I’m in pain. I’m a bitch all the time. It impacts my sleep, independence, physical capabilities, social life—everything. I’m 19 and I need help to open toothpaste sometimes or bend down to grab something. Sometimes my joints partially come out of socket. I’m so tired of it. I’m tired of having to schedule appointments and go to them and then get no improvement. It’s awful. It’s not a good life.
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